Wednesday, August 26, 2009

Rebounding

Sorry it's been so long since we've updated you all. The dreaded phase of Delayed Intensification is drawing to a close and we are just waiting for Eden’s labs to rebound. Eden struggled through the initial portion of this phase and ended up not having to be admitted for any unscheduled hospitalizations. Thank you Lord for allowing her to be so strong!!! Toward the very end of this past phase, we had to give her 5 pokes from home (in her mid thigh). She dreaded them each evening, but dealt with them pretty well. We were able to minimize the vomiting with her anti nausea med. We're praying that her blood counts don't drop farther in the coming days. So for now, she gets approximately two weeks without having to receive more chemo, this is to enable her counts to build prior to her entering the last phase, referred to as the Maintenance Phase.

Eden is still absent of hair on her head, so she spends considerable amounts of time combing her mom's hair and talking about the day that she can again wear bows in her own hair (it should start coming in for good in a week or so). Occassionally, she even combs my hair, but with the absence of hair on my cranium, she quickly looses interest. She's still the sweet little girl she was prior to Jan 14th (the day she was diagnosed). She makes us laugh everyday with the stuff she comes up with in conversation. It's amazing to us how her little mind works. She still loves pulling up a chair in the kitchen helping us make supper, and pulling us into her own kitchen making "cookies"! We're currently working on potty training, and it's going pretty good thus far. She is either liking the idea of getting out of diapers for good, or she's developing a love for the M&M's that she gets as a special treat for "going".

As always, we appreciate prayers for Eden's health as she continues treatment. We ask for prayers for Jenna, Eden's little friend who continues her own battle with cancer (as well as ANY child that has to go through their own battle with cancer!)

6 comments:

  1. Sounds like things are going well - all of you deserve that. It's been a battle and Eden sounds like quite a trooper. Yeh for Eden!! I question who it's tougher on - both of you or Eden, being the quality of parents both of you are. Every one keep up the good job, thinking of you. Steve J.

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  2. We are glad to read that Eden has made it thru the difficult stage and is headed for the maintenance phase. We pray for her and you almost every night with our bedtime prayers.
    Kristi has been emailing us about a possible Degraw reunion this fall. We hope to make it out sometime. I am still filling in at two small churches - Started July l. Don't know when they will find a permanent minister.
    Love,
    Uncle Alan and Aunt Judy

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  3. So happy to hear the news of Eden doing so well through this phase of her treatments. It has been a long and difficult journey, but being the troopers you are, and with God by your side, things will be looking better for all. Our prayers continue each and every day for Eden, and mom and dad too. May your family be blessed in the days and weeks ahead. Love and hugs to all,
    Uncle Heinz and Aunt Mary

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  4. Hi Kurt, Selena, and Eden,
    We are so glad to hear your good news and pray it continues. We are working hard on getting the trailride ready for September 13. We hope you can spend the day with us, but we will understand if you are unable to. Please take care and as always, you are in our thoughts and prayers.
    Deb, Don, Em and Amy

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  5. Kurt, Selena, and Eden,
    I love to hear about Edens funny things she does, the wild adventures she leads you on, and her crazy food cravings. You two are such great parents and Eden is so lucky to have you helping her with her battle. What a strong little girl she is. We miss you guys and hope to come visit soon. Take care. Give Eden hugs & kisses from us. Love ya...Bub, Kim, Hannah & Brandon.

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  6. Sounds like things are going well. We continue to remember your family in our prayers! We pray that God will give you strength and hope as you continue on this journey. Blessings to you!
    Jon and Becky Widmer

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