Friday morning. Eden is still asleep in her big girl bed and I am ready for her to wake up so we can share the day together. It will be a bit chaotic this morning but well worth the goal . . . HOME.
We have been in the hospital 8 days and this stay has forced us to recognize our reality of our daughter battling cancer. Eden has done amazingly well with her treatment. After the first month of steroids the last 2 1/2 months have been relatively normal. Yes, we spend one day a week in Iowa City at the clinic but at home we have adapted to our new normal. She has been sick a limited number of times and has only had only one other non-chemo hospitalization (RSV). This visit has reminded us the severity of cancer and the 2 1/2 year battle we will win.
Eden's next phase is interim maintenance. I haven't looked at it too much as the name itself does not sound to invasive. To start this phase her blood counts will have to rebound to a certain level (I was going to say normal, but the level is only half of normal). From yesterdays counts we will have a while before we will resume chemo. The interim maintenance is followed by delayed intensification. This is the phase of treatment I fear. This will be the most intense treatment she will receive. It is so hard to comprehend that she still had to endure more chemo at a greater intensity.
Counting our Blessings for the week
- we are so thankful that we were 3 blocks from the hospital when Eden became ill and in the clinic when her vitals were questionable.
- Kurt was with us on our trip to the clinic.
- Eden responded well to the antibiotics
- Amazing staff at UIHC. We love them all!
- Friends that packed our bags, mowed our lawn, brought us dinner and have continued to uphold Eden in prayer
- Employers that have been more than understanding of our situation.
- Blood donors - Eden received another blood transfusion yesterday
We are counting our blessing hope you can as well.
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You are looking to the good that has come out of something not so good. Family, good friends and people who care will get all of you through this. Wars are won with the winning of smaller battles. Everyone keep up the good job. So glad that all is going in the right direction. Steve J.
ReplyDeleteYou guys are amazing. We love you and are praying for you!!!!!!!
ReplyDeleteShane, Aubury, Reece and Mya
Eden - you have amazing parents. Their strength and grace is truly wonderful and will help you with your current battle and give you a strong foundation for the rest of your life.
ReplyDeleteWe pray every day for you Eden and hope you return home soon, stronger and able to enjoy beautiful days like today in your own backyard.
Tracy, Amy, Lincoln, Sophia and Abigail
We continue our prayers for Eden, for both of you also, and for better days ahead in both healing and in peace. You both do such a good job of writing your blog, so look forward to hearing what is happening in your corner of the world. Eden is a very bright little girl, one you can be so proud of. Eden certainly was blessed with having such loving and caring parents, Kurt and Selena. You are such a loving family, and God will see you through all the trying times ahead, and with the help of family and friends and many prayers warriors out there praying for all of you. We all can enjoy the blessings around us, if we only take the time to notice them, like Eden notices things we sometimes overlook. God's blessings to you 3, and we continue to hold you up in prayer. Love and hugs, Aunt Mary & Uncle Heinz
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