Eden is doing fabulous! Sometimes I feel that we are just anticipating some sort of illness or bump in the road but this is day 24 of her first maintenance cycle and we are enjoying our healthy little girl. The chemo Eden is receiving at home is well tolerated and thankfully she takes it with ease. Wednesdays are still marked on our calendar as Eden receives an additional chemo along with her nightly chemo; the combination seems to take some of the sparkle from her eyes for a couple days. Thankfully the sparkle always returns.
Eden’s gross motor skills are improving as she can now go down our 2 stairs without dropping to her knees to crawl down. Her running is now able to be differentiated from her walk. She is far from setting any records but it is so encouraging to see her develop some normal toddler skills or regain what she had lost. These delays are related to the Leukemia (causing the severe pain in her legs), Vincristine (one of the many chemos causing leg pain) and her body weight increasing by 20% in a few weeks. The change in her chemo regimen has allowed her hair to return her little head is now covered with about ½ inch of hair (color to be determined later . . . I am still praying for the same red curls).
Cancer has changed our life forever and it continues to affect the lives of so many that we love. Please keep those in your prayers. A big praise and the most exciting news is from my dear friend Trisha she is celebrating 4 years cancer free!
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I pray for continuing good days and weeks for Eden and you both. Your experience makes us all appreciate each little wonderful thing we so easily take for granted. Best wishes for a healthy, happy winter for your family.
ReplyDeleteHi Guys,
ReplyDeleteThanks for the awesome update. We are so glad to hear the great news. We will continue to keep you in our thoughts and prayers!!!
Deb, Don, Em and Amy
Love to you all! We miss you and had so much fun playing with Eden at Ethan's party! Take care of yourselves and enjoy your little sweet girl!
ReplyDeleteIt's so great to hear all is going so well. Cancer will continue to change peoples lives with out question - and not for just those that have the disease. It's important(and the most difficult) to focus on all the good things that comes out of a situation such as yours. The friends that step forward - the support of people that are distant. Eden will continue to get back to her old self but it will take time for the effects of the chemo wear off. The Vincristine can be a little rough on the legs. You all are doing your jobs to deal with a very difficult situation - keep up the good work. Thank you for the update. Steve J.
ReplyDeleteWhat a great post to read. I have been thinking about you guys a lot and praying that life was beginning to be a little back to normal. So fun to read about all the things happening for you! Take care and know we continue to pray for you!
ReplyDeleteLove, Joan (Chad, Lindsay and Allison too!)
It is great hearing that things are going a little smoother for all of you. The "up" or good days help us appreciate the 'little' things we so often overlook. We look forward to the day we can see the three of you again. Right now we have a few sniffles, but not bad enough to get us down. You are in our prayers and thoughts daily, and so look forward to hearing how Eden and both of you are doing. It will get better. Love and hugs from Aunt Mary and Uncle Heinz
ReplyDeleteWe're so happy to hear that she is doing well. Thanks for all of the updates. We keep you all in our prayers and hope to see you soon!
ReplyDeleteMatt, Cathy and kids
I am so thrilled to read such a wonderful post!!! ...a new normal! By studying the pictures we took a few weeks ago it looks to me like Eden is going to have her pretty red hair again. Lots of love to all three of you.
ReplyDeleteLinda