Our Week

We apologize to all our faithful readers for not updating recently. The nice weather has left us all exhausted at the end of each day and just the thought of carrying on a intelligent conversation with someone is scary, let alone to publish something on the internet! And yes I did mean to use the word “publish” we are always amazed at how many people are keeping up with Eden. Then I remember why I am sitting in bed typing and that is to share our mountain that God has put in front of us. So here we go . . .

Eden had good lab results last Thursday. Some of her counts had only dropped a couple of points I was anticipating borderline results regarding chemo on Friday. She met the criteria and we visited the clinic on Friday for chemo via her port and spine. To be transparent I would say this was not our best clinic visit. The nurses were great as always but Eden is really struggling with the process of having her port accessed. Before leaving for the clinic Kurt’s job is to apply Emla cream (numbing cream) to her port. This has been their little routine however, the last couple times it has became an entire family event as it has taken both Kurt and I to hold her down just to apply the cream and get it covered. At the clinic they remove the cream to access her port, this takes both the nurse and I and unfortunately both Mary Lou and Carolynn have been kicked by her little feet. Her scheduled lumbar puncture has once again left me with a feeling of helplessness. I knelt looking at her inconsolable face through the entire procedure and that was after I requested additional drugs. Please pray that this procedure goes better as we will have two more in the next month and a half. Also pray that her routine port access returns to a level of comfort for her.

Relay for Life, always an amazing event! This day just reiterates for us why we are in Washington. Where else could you find such a close knit community all coming together in our Central Park to raise money to find a cure for cancer? Thank you to the planning committee for chairing a successful event. The unbelievable lab results from Thursday allowed us to take Eden to the event. She enjoyed every aspect of the event but was most excited to see her friends that we have kept her isolated from for the last several months. This was a break out of isolation event and a farewell as she is scheduled to begin her delayed intensification in two to three weeks. We are so thankful that God’s perfect timing in Eden’s treatment allowed us to take part. We will post pictures in the next couple of days.

This is a bye week for chemo we are so thankful for these weeks. We have really cherished the past few weeks, as we’ve been able to share so many good times with her. She has had a smile on her face nonstop and we just pray that it continues!!

Thanks for praying for our little E.