Returning to Normalacy

Once again we have neglected updating our CarePage and blog. Our apologies for those of you that have checked in on us.

Eden continues to amaze us with her health. She has remained healthy through the winter months and has exceeded our expectations in tolerating her chemo. Her monthly steroids have continued to be a challenge. It seems like it takes a couple days to affect her and fortunately leaves a day or so after her last dose. On the contrary we are usually able to incorporate at least one new food into her limited diet during steroid week and we have been able to utilize some additional days of steroids to boost her immune system. Regarding Eden’s diet – she has become one of the most particular eaters. I am sure part is her age but I still wonder what it would be like without chemo and steroids.

Last week was a big week at our house; we made a return to normalacy. We had chosen to keep Eden isolated or at least by our side through her intense treatment and through the current cold and flu season. The beginning of March was the start of many programs so we decided it was time . . . story hour, swimming lessons, & Sunday School filled our calendar. Although our hearts were broken throughout the week, it brought us so much joy to see Eden involved in normal childhood activities. I love seeing her smile!

Tomorrow/ today is clinic day! Eden and I will make our monthly trip to the clinic. It is so much harder every month. I think we spend every day attempting to reverse the effects that cancer has plagued upon our lives and then we are reminded that it is still and forever a part of our family. We are always honest with Eden so Kurt told her that she needed to go to the clinic tomorrow for chemo, “Is my cancer back” was her initial response. After a lengthy discussion of why she still needs chemo and I believe some promises of some treats Eden corrected her dad on the correct location of her port and I think she is ready for the day. I am still preparing! Tomorrow, Eden will be partially sedated and then restrained to have chemo injected into her spinal fluid. It is one of the most heartbreaking procedures to witness and the possible side effects leave us on her knees in prayer. God has protected Eden and I know he is in her hands.