Friday, June 26, 2009

enjoyed the week

Jenna Update from the Waters Family . . . "Jenna's journey has taken a different turn. As plans sometime change, her plan is to now have a liver transplant. We will be traveling to Omaha for the transplant but we still don't know when. Please keep little Jenna in your prayers and your hearts. We also pray that there is a living donor match for her to receive part of their liver."

Please continue to uphold Jenna and her family in your prayers.

Eden Update. This past Wednesday was the last treatment day of chemo in this round (Interim Maintenance). Next up is the inevitable Delayed Intensification (DI). DI will include resuming steroids, 2 days of intrathecal chemo, PEG shots, weeks of shots at home, one scheduled hospitalization for chemo and more chemo nightly at home. This round will combine drugs utilized in round 1 and 2 to be the most intense (hence the name) portion of Eden’s treatment. With the increase and combination of drugs we will need to return to the solidarity of home to minimize the germ risks. It is so hard to comprehend that our little girl who seems so healthy will have to endure so much to be cured.

The last month has been wonderful. Eden has had minimal side effect and besides her little head, with only fine little hairs returning, she is a normal little girl. We have enjoyed a few normal activities, as the last couple weeks I have enjoyed lunch dates with Eden while at the clinic for chemo. Who would have guessed that a trip to the hospital diner could be classified as a lunch date (small pleasures!) I think the most exciting part of this round is that we have felt comfortable with Eden playing with friends. It is wonderful to see her interact with children her own age . . . something so normal but I will never take time with friends for granted because of Eden and cancer.

4 comments:

  1. Hello Levetzows! I know this is late - but wanted you to know how much we loved seeing you all out at Relay for Life. What a joy to see Eden having fun with all her friends! We continue to pray for you as Eden continues treatment. We'll certainly pray as you enter this next stage. We love you!

    Tony & Cari

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  2. So good to hear this past month has been a "happy and enjoyable" one with Eden, being able to interact with others. What a blessing. As Eden continues into this next stage of treatment, we will hold her in our prayers, and in our hearts, along with mom and dad too. God works miracles everyday, and we pray that is going to happen with Eden, praying for a complete healing down the road. We love all of you, and continually pray for Eden. Hugs and love, Aunt Mary and Uncle Heinz

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  3. Thank you for keeping the updates going. Make the most of the good times and realize the bad times will pass. Things like this changes everyones values to realize that friend and family are so valuable along with the time with them. Keep up the good job. Thinking of you. Steve J.

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  4. Thank you for posts on Jenna from your website, that is very kind of you. We could always use the extra prayers. Eden, you will do fantastic going into this next phase of your journey to beat cancer! You have done a tremendous job thus far, keep the fight going girl! Thinking of you always!

    Hugs,
    The Waters' Family

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