We are about to conclude an amazing year. A year that we shared fears that we were unable to vocalize, relationships were defined, gained medical terminology we would have preferred to never know, financial strains, limited sleep, our faith was tested and yet God clearly showed his provisions. Our lives have been adjusted more so than any other time (marriage was such an easy transition and Eden was the most perfect baby). Today we are together and so extremely thankful for all of our blessings. We have been given our daughter, in Remission! A true answer to prayer.
We have/will celebrate Christmas with each of our families and yet we were able to be home on Christmas Day. I think the year has taught us the importance of home. We both clearly remember the day they told us Eden would be a frequent inpatient at the hospital. I immediately wanted the security of home as much as possible. We love being home. We were able to be in Our Church Christmas Eve and share our Christmas Gift with our church family, those that have spent much time on their knees praying for Little Eden. Christmas morning Eden has us in the kitchen a little after 6 to make our Baby Jesus birthday cake. She had even discovered, on her own, that the candles from the candle light service at church would be ideal for the cake. It just brought extreme Joy to us for her to even have the slightest understanding of the meaning of the day. Her own nativity set that she received this year has assisted with reiterating the Christmas Story (thank you Jensens it is her favorite gift.) Eden was heartbroken when we took the Christmas Tree down and Kurt explained to her that just because Christmas day is over we can still celebrated baby Jesus everyday. The lessons we learn from our children . . . I hope to put a little Christmas throughout all of 2010.
On the medical side of life Eden continues to tolerate her treatment extremely well. She started maintenance in September and to date she has yet to have the desired blood counts. Her ANC is normal, which defies what the chemo is to be accomplishing. We are anticipating the counts to drop in the next couple of weeks or the 100% dose of chemo that she is on will be increased. As much as we have enjoyed her feeling great we want to keep cancer out of her little body. The effects of 11 months of chemo has became evident as her lab work has showed numbers out of the desired range. The Drs will try to push the limits and will closely monitor her organ functions before decreasing chemo. We ask for your prayers!
Thanks for following us throughout the year you have carried us in so many ways! Happy New Year!
Thursday, December 31, 2009
Thursday, December 17, 2009
December 17th
Yesterday, Selena took Eden up to Iowa City for her monthly clinic visit. It's just not as easy as it once was! Everything from getting her dressed in the morning, to the trip up, and once inside, according to Selena, the experience wasn't great. When Selena and Eden would go up for the weekly visits (last winter/spring), Eden actually looked forward to seeing her Dr's, nurses, and the ever friendly Child Life Services folks. Apparently Eden only said about 20 words the entire time they were there. Normally, Eden says 20 words just to tell us what she wants for breakfast! This particular trip to the clinic included an LP (lumbar puncture). Either the medications prior to the shot or the shot itself made her sick, so bless Selena's heart, she dealt with it as best she could. God was with them as some good friends of ours were across the street from where they stopped and lended a much needed hand. After the girls got home, and after a good long nap, Eden seemed much better. When she woke up, we asked her what she wanted to eat (remember the long nap)...........she said "lets go eat breakfast, and I want french toast". The kid thought it was breakfast time!! So, we made french toast, and she ate very well. We were pleased that it all stayed down too!
Eden's ear infection from a few weeks ago is gone, however, a nasty cough hasn't left yet. Thankfully, it only affects her at night, after she's been sleeping for several hours. It lasts about an hour, and then goes away. We're all looking forward to that cough taking a hike!
Earlier this week while i was at work, i was summoned up to the front desk. I figured it was someone from the general public coming in with a question on some environmental regulation. Nope, it was our friend and neighbor from just down the street, who brought in two wrapped Christmas presents for Eden! That night, I brought the gifts home and placed them beneath our tree. When Eden first seen them, of course, she wanted to open them. We told her, sorry, you have to wait til Christmas. Her response, "dad, we have our Christmas tree up, so it's Christmas". I told her "you're correct, it is the Christmas season, but Baby Jesus's birthday isn't until the 25th, so you have to wait". She was fine with the answer, so she just rearranged the packages back under the tree, and went on her way.
Selena and I are so very thankful for where we are right now. Looking back on this past year reminds us of how much our lives have changed. Obviously, no one wants to have cancer affect their life, however, it's certainly made us appreciate certain things more, and certain other things much less. Thank you for your prayers for our family!
Eden's ear infection from a few weeks ago is gone, however, a nasty cough hasn't left yet. Thankfully, it only affects her at night, after she's been sleeping for several hours. It lasts about an hour, and then goes away. We're all looking forward to that cough taking a hike!
Earlier this week while i was at work, i was summoned up to the front desk. I figured it was someone from the general public coming in with a question on some environmental regulation. Nope, it was our friend and neighbor from just down the street, who brought in two wrapped Christmas presents for Eden! That night, I brought the gifts home and placed them beneath our tree. When Eden first seen them, of course, she wanted to open them. We told her, sorry, you have to wait til Christmas. Her response, "dad, we have our Christmas tree up, so it's Christmas". I told her "you're correct, it is the Christmas season, but Baby Jesus's birthday isn't until the 25th, so you have to wait". She was fine with the answer, so she just rearranged the packages back under the tree, and went on her way.
Selena and I are so very thankful for where we are right now. Looking back on this past year reminds us of how much our lives have changed. Obviously, no one wants to have cancer affect their life, however, it's certainly made us appreciate certain things more, and certain other things much less. Thank you for your prayers for our family!
Sunday, December 6, 2009
December 6th
We celebrated one of the most meaningful Thanksgiving Day’s with family. This year has certainly reminded us what is really important and that regardless of the trials life brings, we have so much to be thankful for. We enjoyed the long holiday weekend together, which was perfect . . . almost. Sleeplessness occurred at our home Saturday night into Sunday as Eden was battling an uncontrollable cough, which turned into some minor vomiting. Morning brought us comfort as were able to get medical consultation to keep Eden comfortable and we all enjoyed our last day home together. Sunday evening we were again faced with vomiting and tears that were consoled with Charlie Brown’s Thanksgiving (this has replaced Cinderella as her comfort movie). Monday we visited Dr Dave at our clinic and her right ear confirmed the ear infection we were speculating. We were thankful for the diagnosis . . . something easily taken care of with antibiotics. Through this we are thankful for the fact that Eden did not fever (automatic trip to the hospital) and for the Drs at Family Practice. The town of Washington is amazingly blessed with the most compassionate and gifted Drs that we trust.
Although, our nights are still accompanied by a coughing, little girl Eden has returned to her usual disposition during the day and we are enjoying all of her antics. Although we have not been able to spend our weekends in Ames this year cheering on the Cyclones, we have been able to watch a little football. Eden received a special football this weekend and was gearing up for a game of football with her helmet on. Eden had a stocking hat on (as her helmet), Dad was wearing something resembling a tiara, meanwhile, I was chasing her trying to get a med in her. She says to me “Mommy, football players don’t take meddy.” Well Eden, this one does!!
Please pray that we are able to keep Eden healthy and fever free, and that Eden remains in remission.
Although, our nights are still accompanied by a coughing, little girl Eden has returned to her usual disposition during the day and we are enjoying all of her antics. Although we have not been able to spend our weekends in Ames this year cheering on the Cyclones, we have been able to watch a little football. Eden received a special football this weekend and was gearing up for a game of football with her helmet on. Eden had a stocking hat on (as her helmet), Dad was wearing something resembling a tiara, meanwhile, I was chasing her trying to get a med in her. She says to me “Mommy, football players don’t take meddy.” Well Eden, this one does!!
Please pray that we are able to keep Eden healthy and fever free, and that Eden remains in remission.
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